VCGS clinical geneticists and genetic counsellors work as a team to meet the needs of individuals and families accessing our services. We provide medical and management advice, as well as information, education and support to families facing a genetic health concern.
We can also link you with consumer groups that offer a range of support to families living with genetic conditions. Consumer groups can help you access community based services, connect with others, and provide education and information.
While there are many individual condition-specific consumer groups, the following ‘umbrella’ consumer groups provide support and information about a broad range of conditions.
Genetic support network of Victoria (GSNV)
Syndromes without a name (SWAN)
Genetic alliance of Australia
Association for children with a disability (ACD)
Rare chromosome disorder group (Unique)